Receiving a diagnosis of cancer can be a stressful time for you and those important to you. Filling in this survey may have led to you thinking about this more. We want to let you know that there is support available for you; in person, by telephone, and via websites (As outlined below). We want you to know that there is always someone to talk to about how you’re feeling.
There are many services available to support you with this, including:
- Support for Family and Friends - Caring for someone with cancer can be difficult and can affect people's own health, mental well-being, working life, and relationships, it is important to seek help and support for yourself, as a family carer”
- Emotional support and wellbeing – Cancer changes our lives and we need to regain our confidence, manage our stress and deal with our emotional difficulties
- Financial support – A diagnosis of Cancer has a financial impact on everyone involved. Advice available includes accessing financial benefits, applying for grants, help with prescriptions costs, help with transport to hospital and parking costs”
- Support with Dietary advice – Eating the right kinds of foods with the important nutrients the body needs before, during, and after cancer treatment can help you feel better and stay stronger, expert dietary advice is available if required
Organisations providing support
Local Support can be found from the following organisations:
East Norfolk and Waveney
Norfolk and Waveney
Little Lifts is an organisation supporting women across Norfolk and Waveney who have or have had breast cancer.
More about cancer
Cancer is a condition where cells in a specific part of the body grow and reproduce uncontrollably. Once these areas get bigger, depending upon where they are, they might be felt as a lump or cause other symptoms such as a cough.
If not caught early, the cancerous cells can invade and destroy surrounding healthy tissue, including organs.
Cancer sometimes begins in one part of the body before spreading to other areas. This process is known as metastasis.
1 in 2 people will develop some form of cancer during their lifetime. In the UK, the 4 most common types of cancer are:
There are more than 200 different types of cancer, and each is diagnosed and treated in a particular way. You can find links on this page to information about other types of cancer.
Diagnosing cancer earlier means it is more likely that patients will receive treatments that can cure cancer. At the moment only around 1 in 2 people with cancer in the UK are diagnosed at an early stage. Earlier and faster diagnosis is dependent on people understanding and being aware of the early signs and symptoms of cancer, by taking up screening programmes or visiting a healthcare professional. One of the ways we can achieve this will be to help the public understand some of the signs and symptoms of possible cancer and helping GPs to refer patients for diagnostic tests
Around four in ten cancers could be prevented largely through lifestyle changes. For ideas on how to get more active visit Active Norfolk, OneLife Suffolk, and Moving Medicine. Smoking accounts for one in four UK cancer deaths and can cause at least 15 types of cancer. If you would like help to quit smoking see the links below.
You can find a series of videos to help you find reliable health and wellbeing information online. Topics include finding mental health resources on websites such as the NHS and MIND, reliable information online about physical activity and adult and children's sleep. View the videos on YouTube. or check out Norfolk Libraries Health and Wellbeing online resources Health and wellbeing online resources - Norfolk County Council
Smoking cessation services
How to access cancer services during COVID-19
Check with your hospital for specific arrangements relating to COVID-19, links can be found below:
JPUH Gorleston (East Norfolk)
NNUH Norwich (Central Norfolk)
QEH King’s Lynn (West Norfolk)
Your care team will talk to you about the benefits and risks of starting or continuing cancer treatment at the moment.
Get advice about coronavirus and cancer:
Cancer Research UK: Coronavirus and cancer
Read our report into cancer experiences during COVID 19 (Uploaded 31 Mar 2021)
What can you expect from your cancer service?
Cancer during COVID-19 - an update from the Cancer Alliance
Questions and answers on cancer care during COVID-19 from the Cancer Alliance (As of 12 January 2021)
How will I be referred to the hospital if I have worrying symptoms?
If you have worrying symptoms your GP will refer you to the hospital on a “two-week wait” this is a request for an urgent assessment from a hospital specialist Dr because you have symptoms that could be suggestive of cancer. It does not mean you have cancer, but cancer needs to be ruled out. Detecting cancer early improves your chances of surviving.
Your first contact from the hospital may be a virtual consultation or appointment for further tests. It is important that you attend any appointments and tests so that a diagnosis can be made quickly. If you have not heard from the hospital within three weeks of seeing your GP, it is wise to check that that the referral is being dealt with and your tests have been booked.
Follow this link for further information about how to get what you want out of a virtual consultation with your Dr or nurse.
If your condition improves, it is still essential to do all the relevant tests so cancer can be ruled out. Your hospital specialist team of Drs and nurses will guide you. Similarly, if your condition is rapidly getting worse, you must contact the GP or your specialist Dr.
When the tests have been done, the hospital specialist Dr or nurse will tell you the results and discuss any treatment needed if cancer has been identified. If there is no cancer, your care will go back to your GP or you may be referred to another specialist team if needed. If you continue to have symptoms, you must seek further help from your GP Practice.
How will I be supported during my cancer care?
All people affected by cancer are given a cancer nurse specialist to speak to. You will be given their contact details by the hospital staff.
How will my care needs be assessed?
During your cancer journey you will be invited to complete a Holistic Needs Assessment (HNA) covering all aspects of your physical and mental well-being; so appropriate help and support can be given to you.
Will I receive a care plan?
Any concerns you raise after completing a Holistic Needs Assessment, will be discussed with you and your Care Plan will be agreed, with positive ways to move forward, which may include directing to other support as required.
What should I do if I am experiencing worrying symptoms from my cancer treatment?
Worrying symptoms can be addressed by your GP practice. If you have worrying symptoms, here are some examples.
If you are receiving treatment for cancer and are experiencing side effects or feeling unwell each hospital has a 24/7 telephone helpline for advice in this situation. This is called the Acute Oncology Service (AOS) and you should have a yellow card with the telephone number on it to ring.
- Cancer services at our hospitals
- Cancer services in neighbouring counties
Definition of cancer terms and roles
This glossary of cancer-related terms are courtesy of MacMillan Cancer Support
If you have cancer, you’re likely to meet many different doctors and health professionals during your care. They’ll each have different expertise in cancer and together can provide the best treatment for you.
Cancer Nurse Specialist (CNS) – Nurses with in-depth knowledge in the specific area of cancer care. They are the main contact during and after cancer treatment.
Oncologist – a doctor who specialises in cancer care and has advanced knowledge and understanding of cancer treatments. Oncologists treat cancer using methods other than surgery, including chemotherapy and radiotherapy.
Surgeon – a doctor who specialises in carrying out operations to treat an injury or condition. When treating cancer, different surgeons will specialise in operating on specific parts of the body.
Radiographer - a diagnostic radiographer uses techniques such as X-ray, MRI and CT scans, to take images. A therapeutic radiographer operates the machine that delivers your radiotherapy treatment.
Radiologist – a doctor who specialises in using imaging methods to diagnose medical conditions, including cancer.
Dietitian – can give you advice on healthy eating especially if you’re having trouble eating and drinking because of your cancer treatment.
Physiotherapist – a health professional that specialises in maintaining and improving movement and mobility.
Psychologist or counsellor - a psychologist is a health professional who specialises in emotional and behavioural problems; a counsellor is a health professional who also provides emotional support.
Pharmacist – a pharmacist prepares and checks the type and dose of medicine that your doctor prescribes. They can also advise you on how to take your medicine and the possible side-effects you may have.
Occupational therapist – a health professional who can give practical assistance to help you manage everyday activities and increase your independence.
Histopathologist – a doctor who examines samples of tissue under a microscope to help diagnose a disease such as cancer.
Physicist – an expert in radiation who will help to plan your radiotherapy treatment.
Cancer Body Site Information
Patient feedback and how to get involved
We really want to hear about your experiences of cancer care in Norfolk and Waveney. You can do this via local Patient Advice and Liaison Services or PALS.
You can also give feedback via the three cancer service user groups based at the main hospitals.
Please contribute to the COVID-19 cancer services experience survey parents, carers and guardians are welcome to complete the survey on behalf of others.
If your feedback is related to your GP Surgery then please visit their website for information on how to give feedback. You can also feedback through your local Patient Participation Group (PPG) details will be on your GP Practice website.
Please complete our survey for those affected by cancer during coronavirus
A report from Active Norfolk's previous survey can be found here.
A report on the impact of COVID-19 by Active Norfolk can be found here.
Local media coverage
Healthy lifestyle options
In this short video, Ryan Hughes from Active Norfolk provides some guidance on why it's important to stay active through cancer and where to find out further information. Details are also posted below the video.
Around four in ten cancers could be prevented largely through lifestyle changes. Keeping active before, during and after cancer treatment can help both your physical and mental health.
Remaining Active Through Your Cancer Journey - Download leaflet
The Big C have worked with Active Norfolk to develop a 12-week physical health and wellbeing support programme to increase your physical activity with weekly online exercise classes and regular 1:1 support. Download the information leaflet here. Further details can also be found here.
Big C also provides more resources and ideas for staying active with cancer on this webpage.
Moving Medicine provide support and guidance for health professionals on discussing physical activity in relation to a wide number of long term conditions, please visit the moving medicine website.
Health eating ideas from the Royal Marsden Hospital
A diagnosis of cancer can have a dramatic impact on patients, close family, and friends. It has the potential to create an emotional rollercoaster which may lead to fear, disbelief, denial, loss of control, and despair compounded by physical concerns and financial uncertainty. You can still take steps to prepare for your treatment and recovery by adopting healthy behaviours such as exercise, good nutrition and psychological interventions to improve your mental and physical well-being. Strong support from people around you can also make a huge difference. It is never too early to start; this is the idea behind the term of pre-habilitation.
Pre-habilitation can provide three main benefits:
- Help you to build a sense of empowerment
- Support you to improve your physical and psychological resilience (strength)
- Benefit your long-term health and wellbeing.
Further details of pre-rehabilitation are available on the Macmillan website.
Smoking accounts for one in four UK cancer deaths and can cause at least 15 types of cancer. If you would like help to quit smoking, see the links below:
Smoking Cessation Services
Clinical trials are medical research studies that are an important part of finding better treatments in diseases such as cancer. They are also used to develop prevention and screening programmes and to evaluate the best ways to make diagnoses. They are necessary to extend medical knowledge and to improve treatments and care. Doctors also use the results from clinical trials when they advise on current treatments.
The main priority of the medical team looking after you is to offer you the best treatment and care. This may be through a clinical trial.
If you do agree to take part in a clinical trial, you will be very regularly and carefully monitored.
If you'd to take part in a clinical trial and would like more information you will find some information on the Cancer Research UK website.
Prevention of digital exclusion
In primary care, it is estimated that 85% of GP appointments have taken place remotely since the pandemic. This is compared to just 5% before the pandemic.
This can be a positive step for many and can help improve access to medical appointments. However, not everyone has the same access to digital or knowledge of how to use it. Digital transformation may be a real concern for some people, especially among elderly people, people with disabilities and people with language barriers.
To make sure patient groups at risk of digital exclusion are not overlooked, Healthwatch Norfolk supported by Healthwatch Suffolk and The Norfolk and Waveney Health and Care Partnership, have launched a project to collect patient experience, focussing initially on people affected by cancer.
We are exploring patients’ perception and experiences of virtual consultations via a survey. If you would prefer to talk to someone about your experiences you can contact Healthwatch Norfolk directly by phone or email.
The survey will attempt to understand:
- Whether people with cancer have had a virtual consultation
- Whether the consultation met their needs
- Their overall experience
- Which individuals or communities are being digitally excluded
- Potential improvements that could be made to make digital access to primary and secondary cancer care consultations better
The recent survey has now closed. Please see the Healthwatch Cancer Appointment Experiences During COVID-19 report from the survey responses received.
Digital Health Hub
Norfolk Libraries Digital Health Hub supports people to gain digital skills so that they can access reliable health information for long term conditions, and learn how to use GP online services, search the NHS website and look at the NHS Apps library.
Sign up for a short 1-to-1 session:
- Telephone on 01603 774777
Support may be offered online during COVID-19 restrictions, but this would normally take place in a Norfolk library during library opening hours.
If you have an immediate medical need, please use the 111 service or call your GP.
We also have a series of videos to help you find reliable health and wellbeing information online. Topics include finding mental health resources on websites such as the NHS and MIND, reliable information online about physical activity and adult and children's sleep. Click here to view the videos on YouTube or visit the Norfolk Libraries Health and Wellbeing online resources.
Local Patient User Groups Information
Patients, carers, and companions can help make positive changes and help improve local cancer services by giving patient’s a voice through their feedback and help the NHS improve services. There are three cancer patient user groups within Norfolk and Waveney based at the three acute hospitals. They work in partnership alongside the clinical and non-clinical staff to improve patient experience. If you would like help/advice within your area or would like to be part of one of the groups, please contact your representative in your local area as below:
Cancer Wellbeing and Support Centres within Norfolk & Waveney
Local Support can be found from the following organisations:
NHS iapt Wellbeing Service: https://www.wellbeingnands.co.uk/
Big C Charity: https://support.big-c.co.uk/
Big Support & Information Cancer Hub @ Wells community hospital ( Monday only): https://support.big-c.co.uk/our-centres/wells-community-hospital-drop-in-support-hub/
GREAT YARMOUTH & WAVENEY
Big C Support & Information Centre: https://support.big-c.co.uk/our-centres/great-yarmouth-centre/
Big C Support Hub at Louise Hamilton Centre: currently closed as being used as a vaccination centre.
The Pear Tree Centre, Halesworth: The Pear Tree Centre - The Pear Tree Fund
Big C support & information hub @ Thetford Healthy living centre (Friday only):https://support.big-c.co.uk/our-centres/thetford-healthy-living-centre-drop-in-support-hub/